Archive for the ‘Our News’ Category

CRF Launches children’s DVD

Thursday, July 8th, 2010

coeliac disease news and eventsThe CRF has launched a DVD for children which explains in simple language what coeliac disease is, who is involved during the diagnosis process, what to expect during diagnosis and managing coeliac disease with a gluten free diet.  The DVD targets children from the age of 8 upwards and it is hoped, that by understanding their condition, children will become their own best little experts on coeliac disease.

The DVD is an informative tool for GPs and paediatricians as well as providing an easily understood explanation of coeliac disease for family, classmates and friends.

Thank you to those who made the developent of the CD possible, the Zig Inge Foundation, Nexpep, Associate Professor Don Cameron, Avril Brereton and Graham Cumming Multi Media.

You can download or order on line by clicking here.

Helen Macpherson Smith Trust Supports Education Project

Monday, July 5th, 2010

hms-logo-colourCoeliac Disease Matters - Four Educational Outreach Programs Planned

We extend our gratitude to the Helen Macpherson Smith Trust for their support of our planned Educational Outreach Programs in collaboration with The Coeliac Society Victoria. 

 

 

Recognising the need to develop a high calibre educational outreach program to disseminate key, up-to-date messages about coeliac disease, the CRF and CSVic have combined to ensure delivery of four educational programs each comprising a general public session and one designed for GPs and allied health professionals.  Programs will be delivered in the western suburbs, eastern suburbs, Bairnsdale and Warnambool and will form the basis of an educational model which can be delivered interstate.

Now that funding has generously been agreed by the Helen Macpherson Smith Trust, we can begin planning in earnest for this exciting new project - watch this space for upcoming dates and venues.

Professor Maki Awarded PQLPY Prize

Friday, May 7th, 2010

coeliac disease researchGuests at the Melbourne breakfast seminar applauded as Professor Markku Mäki was awarded the inaugural PQLPY Prize sponsored by Inova, Integrated Sciences and Nexpep for his contribution to coeliac disease awareness and diagnosis.  The PQLPY Prize will be awarded by the Coeliac Research Fund from time to time when a suitable recipient is identified that has made a significant contribution in the field of coeliac disease awareness, diagnosis or research.  Dr Bob Anderson presented the prize to Professor Mäki highlighting the contribution, over many years, Professor Mäki has made to coeliac disease.

coeliac disease news and events

PQLPY is the core sequence of the immundominant gluten epitope in coeliac disease.

An outstanding contribution

Professor Markku Mäki, MD, PhD is the Chair and Professor of Paediatrics at the University of Tampere and Tampere University Hospital in Finland and is one of the world’s foremost innovative opinion leaders in coeliac disease.

More than two decades ago, he joined the Finnish Coeliac Society began research that was inspired by the needs of coeliac sufferers.  Markku Mäki was soon leading a multi-diciplinary Coeliac Disease Study Group including paediatricians, primary care physicians, internists, dentists, dermatologists, neurologists, epidemiologists, and life science researchers.   The outcome of his group research is the understanding of the broad clinical spectrum of gluten-induced disease entities, the correct use of serologic biomarker tests and a rapid point of care test in the primary health care, leading to a 20-fold increase of diagnosed coeliac disease in adults in Finland.

Professor Mäki was elected as the President of the nationwide Finnish Coeliac Society, and he is still the Chairman of the Scientific Advisory Board. He is a permanent member of the Finnish Academy of Science and Letters and the President of Finland granted him the honour of Knight, First Class, of the Order of the White Rose of Finland in 2006.  Professor Mäki has published over 200 scientific articles on coeliac disease in international journals, many of which have made significant contribution to the understanding of coeliac disease.